Hi,
Yet again another day of contrast.
Stevie had a very disturbed night's sleep and so Jan and I had a disturbed night.
Stevie is right in the area of susceptibility for SUDEP. Sudden Unexpected Death in Epilepsy, and this happens most often during the night. Every twitch, irregular breath (or snore!) registers with one or both of us, disturbs sleep and makes us very nervous. Hence our tiredness.
Stevie started today quite awake for all his disturbed sleep last night, but when he got onto the bus for his work he was getting slow and he had a seizure when he got to his Grandma's after work. Very dopey.
One thing you notice is that he has a tendency to revert to child like behaviour after one of his major seizures. Childish speech, lack of cognition etc. all seem to be a consequence of the colapse seizures, and this consequence is becoming more noticeable. some of this behaviour in a child is OK, but seems very strange coming from a 15 stone 20 year old!
Let us see what happens tonight and tomorrow. He has an eyetest along with us and as he has a slight squint (it seems) and flicking eyes it may prove to be a problem. Having said thathis syesight has laways tested as excellent>
We shall see.................................
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