High bits. Stevie's magnificent hanging basket for the house in apology for some grumpy behaviour, being in good order throughout the week with no cluster attacks and just a few single or double seizures and being pretty cheerful all week. He also helped me deliver an Epilepsy Awareness lecture to the members of staff of a care home.
The BIG low of the week was Stevie having a seizure while walking down the street in Cardiff with me. He stopped, head down, arms posturing and a groan. Typical seizure for him but he didn't collapse. I was standing holding him up waiting for the seizure to pass when I noticed a woman with her child look at us, grab her child's hand and cross the road to avoid coming near to Stephen. When I said "Do you think he is infectious or something? He suffers from Epilepsy, not the plague!!", she shouted (Yes shouted!) "If he acts like that, he shouldn't be let out!" And marched off with her child. Thank God Stevie did not hear that.
Some peoples ignorance is amazing and very saddening. I really hope Stephen never has to hear this sort of stuff. Unfortunately he is almost bound to.
This is what one of Stevie's seizures look like.
This is what Stevie's seizure looks like on his EEG:-
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Just look at these 1 - 4 and try to imagine what it would be like if this was going on in your brain!
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