Hi world,
I don't really know if anyone is actually reading this, but here we go again.
A few month ago Stevie had a Psychology assessment with the excellent Dr Claudia da Silva Martins. He reacts really well to her and always has.
Unfortunately his functioning has indeed suffered a decline as we had thought. If you didn't live with him though you probably wouldn't notice as he is existing in the bottom 1% of the population in all relevant clinical psychological areas apart from Social skills where he is in the bottom 4% of the population. Some solace I suppose.
I am crying inside as I write this. There seems to be little or no prospect of any improvement, but we have to hope or it would be too easy to just give up.
I am terrified of the future. What sort of future does he have in reality? What happens to him when we are gone? Who and how will he be looked after? I am terrified for him.
We still haven't had a reply from Social Services about organising some respite care so Stephen can return to his social club at Friendship House. His collapses scare them and they do not have the volunteers to cope. I have nagged again, but if we do not get a reply by the middle of next week I may have to go and "kick" the door in and make a nuisance of myself.
WHY is it so difficult for us to access what Stevie needs when others who have a lot less need get what they want with seeming ease?
Justice? What Justice?
A caring God? Don't make me laugh...............
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