I swear its Swansea..............

We have been back from France for 3 days and Stevie has been in poor form.

We have had 2 sets of multiple clusters, 2 sets of 2 - 3 seizures, and probably many, many individual "absences". His short term memory is pretty much non existent. He has asked the same question 4 - 5 minutes apart a number of times the last few days.

Makes life very difficult.

I have another day of delivering Epilepsy Awareness lectures, this time to staff members of Carmarthenshire Council. Should be an interesting day, and hopefully more understanding of the condition from people in position to do something about it locally.

We shall see.............

We want to go back to France, it all seemed so much easier there.................

Holidays!

Ah well, 2 weeks into the holiday in France, the rain has started so time to Blog!

Stevie has been quite well with the occasional seizure and a cluster attack every 3 days or so.

Still to my thinking this is too much as it means that the Rufinamide seems to have lost its efficacy. Why does it seem that we are always one step forward two steps back. It is really hard to keep your spirits up when you see the full effect on Stevie.  After an attack he has no memory of what he was doing, where he is, and often who we are.
This has been awkward at times here in France as he has asked questions of people loudly in English,  much to the bemusement of the unfortunate French speaker!

More info to come when we get chance and hope you are all well out there in blogland!!

 A picture  of Stevie today while playing games in the caravan: