Well we have everything recently. Days of no seizures, days with 45 minutes worth at 2-3 minute intervals, and variations in between!
Ah well only a few days and we set off to France for three weeks on holiday!
The Prof. tried twice to get hold of me yesterday, but as I was at work "plaiting tin" I could not answer. We need to know from him where we should go now with treatment. If he cannot come up with anything we may have to convert "Support Stevie" on Facebook into a charity and look into treatment etc. that is going on abroad. The USA and Australia seem to be the places where the groundbreaking research is going on (John Hopkins etc.) so much research needs to be done.
Obviously depending on what Prof Kerr says. Not because we don't want to "step on his toes", but we need to find a way to stop the continuing decline.
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