Ok, the Rufinamide will be off Stevie's drugs in 4 weeks and we are getting back to where we were some 18 months or more ago, but not in a good way - see the next paragraph. It seems that there may be another drug option, or maybe not. We have a Neurology appointment next week, hopefully for another MRI to see what can be seen in his bonce. The last one was some 3 years ago.
Stevie's collapses are now pretty much once or twice a day and he is consequently getting hurt again as well. Some good bruises to his back at the moment.
He is also loosing ground cognitively again I think, but others disagree! He repeats himself constantly within a minute or so about everything, starts to say something and cannot remember what he is going to say. Things he knew what to do a while ago he now cannot remember how to do.
It is heartbreaking. And there is no end in sight!
However, on the good side there is a Rugby Game with the Gladiators RFC coming up against Worcester RFC on the 7th Dec on the Swansea RFC ground at St Helens and a tour to Belfast in February. Always assuming of course my body can manage it. Stephen is fine, my body is the problem!!
We shall see what happens next!!
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